Don’t click the link. there is no point reading this, if won’t matter to you so why bother?

 

Humm you clicked the link! I told you not to, seriously it’s not too late, if you stop reading now you will know no more than you do now and it will be fine.

Why are you still reading? I am trying to warn you that there is absolutely no point in you reading about this. Unless you are one of the 1:2500 people that this actually matters to why waste your precious Facebook time reading about this, seriously stop reading and take a selfie or something.

Wow you just can’t be stopped can you? Well don’t say I didn’t try to warn you, honestly if you keep reading you are going to be told all about a genetic condition that you probably can’t pronounce and if you can’t pronounce it then there is no point even trying to remember it right?

So now I am going to tell you that this condition affects people in so many varied and unpredictable ways that it is not easy to understand, so there is no point even trying right?

Ok off you go bye bye, there is absolutely no reason for your life to be affected by this is there, I know you don’t care because no one has ever cared if they did we wouldn’t be fighting for awareness in a time when much rarer conditions are more well known.

There is no point reading this because you do not have tumours growing on your nerve endings

There is no point reading this because you  are not disfigured

There is no point reading this because you are not covered in lots and lots of lumps

There is no point reading this because you think café au lait is just a type of coffee

There is no point reading this because you do not have a whole host of different complications caused by this condition.

There is no point reading this because you will not remember the word neurofibromatosis

There is no point reading this because you will not share this link, so that others can be told not to read it.

Unless…..

If you are still reading perhaps you can see that I do have a point, perhaps you have neurofibromatosis (NF as it is known for short), or perhaps you know someone who does, or maybe just maybe I have peaked you interest enough for you to want to learn more, and maybe just maybe to want to help us raise awareness by sharing this post…and if I am really lucky you will click on my just giving link and donate a few pennies to The Neuro Foundation so that the people who know that there in fact is a point can actually have the funds to support people with this condition.

 https://www.justgiving.com/Carly-Jim/

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So please dig deep and donate now.