Story
Imelda is an amazing, determined little girl, who given the opportunity knows NO limits. With the right medical care, therapy and equipment, she keeps surprising everyone with her ability to learn and defy the odds of her situation. Her biggest challenge is access to services and equipment, as the NHS is so underfunded and services are either not available or overstretched.
Therefore, Imelda relies heavily on privately funded therapy and equipment, without which she would have a very different quality of life today.
Imelda has a unique chromosome disorder shes one-off! This shows itself in global development delay, hypotonia and infantile scoliosis for which she wears a brace for 22 hours a day to control the curve from progressing. Her epilepsy and kidney reflux are managed with daily medication and shes learning to cope with nystagmus and a hearing impairment with regular check ups. She struggles with sensory processing disorder which affects the way she moves, eats, drinks and plays. She is under the care of many teams at Great Ormond Street Hospital.
And this is where you come in - every penny donated to Just4Children goes directly into therapy and equipment for Ime, giving her the best possible chance in reaching her potential.
Professional in clinic therapies at Napa in Harlow cost £115 per session. Imelda currently accesses 3 sessions per week which are physiotherapy, occupational and speech and language therapy.
Intensive block therapies in the school holidays work great for Imelda. They are £180 for 2hrs a day for 2-3 weeks at a time. Imelda gains so much from her intensives, mastering new skills by the end of the block. Without fundraising Imelda simply would not be able to reach her potential.
Please keep supporting and tell people about this inspiring, smiling, giggly girl that continues to try her best all of the time.
Thank you