Tahnee is 10 years old but has been in pain since she was 3 days old.

She was very skinny when she was born, impossible to wind, a very fussy eater, never slept and screamed for 5 months. We visited the hospital numerous times to be told she was just hungry, colic, reflux, silent reflux. We have always known that something was not right and continued to try and get to the bottom of her pain, she has been diagnosed with lots of medical conditions and been given medication but nothing has helped. As her parents this has been the most torturous thing in the world. To watch our daughter suffer and not be able to take away that pain.

In the last 2 years her symptoms have got unbearable, she cant eat due to the stabbing pain in her throat, she has lost over 10kg in weight, her chest is tight and stomach hurts from hunger all the time. She gets a gurgling sensation and gas tries to come up and stops in her throat making her feel sick. She doesn't sleep and when she does she has to sleep sat up, she cant run or do any form of exercise because it hurts. She gets hiccups that feel like a knife is stabbing her in the chest and she farts all the time. She now suffers from anxiety, hates eating out and I have to carry food on me all the time so she can eat whenever she needs to. A 6 inch subway takes her 2 days to eat.

I have never given up researching, speaking to people and trying to get to the bottom of her pain and in the early hours of one morning I stumbled across an article about no burp syndrome and everything fell into place. I then went to the doctors and said this is what she has and he had never heard of it, next I went to hospital and the paediatricians had never heard of it. So back to the internet to find how I could get her treated and I found Doctor Karagama, I booked an appointment and off to Manchester we went, as soon as we saw him and explained her symptoms he was in agreement that she had no burp syndrome and booked her surgery.

Tahnee's surgery is booked for June 28th and costs £3912.00, she may need the surgery more than once if it doesn't work the first time and the hospital is 3 hours from home.

*Any money raised that is not used will go to help other children under the Bradley Lowery Foundation.*