About Alstrom Syndrome UK
We support and empower families who are affected by one of the rarest diseases in the world, Alstrom Syndrome. This complex condition affects every organ in the body and can lead to progressive blindness and deafness. Providing information, research opportunities, medical clinics & fun activities.
www.alstrom.org.uk
info@alstrom.org.uk
Alstrom Syndrome UK Registered charity number 1071196