I (Kelly)  work with Bob Wright. When I heard the story of his son Jacob's short life and all the things he has inspired people to do in his memory I wanted to do something to make a difference. Here is his story:

Jacob was Claire and Bob's first child. They had so many hopes and dreams for their little boy but those dreams were never to be. 

At 8 months Jacob started having terrible seizures day and night that could not be controlled. He lost all of his skills even his smile. At 14 months they were told he had Mitochondrial Disease. A genetic condition with no treatment or cure. They were told he would probably not reach his 2nd Birthday. 2 months later he died in his mummy's arms with his daddy holding his hand.

Every 20 minutes a child his born who will develop the disease by the age of 16. No treatment and no cure and always life limiting. That simply isn't right. The Lily Foundation want to change that. They support families and fund vital research. They want to stop families like Jacobs going through the pain they have gone through and the emptiness they will always live with.

We are going to do the running so please could you give what you can to help me help families like Jacobs because no child should be told they have no future - we need a cure now! 

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