Emily McGovern
Behcets Syndrome Society
Fundraising for Behcet's UK
Story
Behcets syndrome/disease is a rare autoimmune disorder that Lee (one of the team members) was diagnosed with a number of years ago.
Behcets is a complex inflammatory disease and sufferers have multiple symptoms including both internal and external ulcers, eye involvement (with a risk of going blind), joint pain (rheumatoid arthritis), chronic fatigue, gastrointestinal issues, chronic headaches... and that's just a few. Unfortunately, due to the lack of funding and rarity of this disease, there are no cures or even medication; since being diagnosed Lee has been on a cocktail of different drugs that are primarily for other diseases to try and manage her symptoms. Some work, some don't... it can be a bit of a rollercoaster for someone with Bechets.
More funding would enable more research into the disease and provide better medical care for sufferers. Therefore we're asking for you to part with your hard earned cash to help us.