Luke Harley

Luke's page

Fundraising for Dystonia UK
£750
raised
Donations cannot currently be made to this page
Event: Virgin London Marathon 2011, on 17 April 2011
Dystonia UK

Verified by JustGiving

RCN 1062595
We exist to give hope and support to everyone living with dystonia.

Story

Thanks for visiting this page.

I ran the Brighton Marathon on the 10th April 2011 in 3h48 and the London Marathon on the 17th April 2011 in 4h11 ! My legs ached all the way on the London its nothing compared to the muscular pain that sufferers of Dystonia have to live with every day.

The charity I'm running for is the Dystonia Society. There is very little known about the condition of Dystonia and you may not have heard about it before. It's often misdiagnosed which hinders correct treatment and care. Over 70,000 people are currently living with Dystonia in the UK.

Dystonia causes involuntary uncontrollable muscle cramps and spasms. It forces the body into movements that are painful and completely uncontrollable. Those affected with Dystonia are affected every day. It is not understood what triggers this condition. Treatment is sporadic in effectiveness. There is no known cure; or time frames for how long someone will have Dystonia.

Anybody can suddenly become affected whatever age, background, lifestyle. 

The Dystonia Society aims to ensure that everyone affected has access to the most appropriate treatment, support and information they need to achieve the best possible quality of life whilst affected with this condition.  

Please give generously whatever you can afford to help.

Please also visit the websites and find out more about this often misdiagnosed condition.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Thanks

Luke

 

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About the charity

Dystonia UK

Verified by JustGiving

RCN 1062595
Dystonia UK is the only UK wide organisation driven to ensure that the 100,000 people across the country with dystonia have access to crucial information support and essential treatment. We exist to give hope and support to those living with Dystonia creating UK and worldwide awareness.

Donation summary

Total raised
£750.00
+ £189.07 Gift Aid
Online donations
£750.00
Offline donations
£0.00

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