Along with about 50 other riders, I am undertaking a challenging cycle ride from 5th - 12th November this year in Israel from the Sea of Galilee to the Dead Sea (the lowest point on Earth) and back up to above sea level.

Thanks for donating to our cause, don't be ashamed to "give and go", we appreciate that your time is precious and we are very grateful for your donation but if you can please read about the cause that we are supporting this year that is close to our heart.

Spinal Muscular Atrophy (SMA). 

This charity first came to our attention as one of our riders has sadly had a child diagnosed with the condition.

 

SMA is a muscle wasting disease that affects thousands of people in the UK, of all ages, races and backgrounds.

Key Facts

·         SMA is genetic, incurable and currently untreatable.

·         It is the leading genetic killer of infants and toddlers.

·         50% of the most severely diagnosed cases result in death by the age of two

·         1 in every 6,000 births is affected by SMA.

·         1 in every 40 people is a carrier of the defective gene that causes SMA (around 1.5 million people in the UK)

However, the scientific community and pharmaceutical companies across the world are making significant advances.  They know the specific gene affected, and are running clinical trials. The SMA Trust is a UK registered charity, and is dedicated to finding a cure for SMA. The charity was founded in 2003 and is the only UK charity solely dedicated to funding research into the condition.  

Naturally we are all keen to do whatever we can to assist in anything that may one day bring a cure to this condtion.