Jonathan Dee
The Platinum Ball 2014
Fundraising for The SMA Trust
SMA stands for Spinal Muscular Atrophy.
SMA is a devastating, genetic disease. It is a leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function. But their minds are unaffected resulting in bright, intelligent children with varying degrees of physical impairment.
SMA is currently incurable.
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