Hector is running MGA over 2014

Hector Romo-Parra is raising money for Myaware - Fighting Myasthenia Together
€607
raised of €1,000 target
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Münster Marathon · 8 September 2013

Myaware - Fighting Myasthenia Together

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RCN 1046443 (England & Wales) and SC044744 (Scotland)
We increase public and medical awareness to support people with myasthenia

Story

“Move yourself for the one that can not move”

This year I will be participating in different events to raise funds for MGA, from 5k running, going through triathlon, marathons and maybe (maybe!) a 6 hours ultra. Do you want to know more about my story? just continue reading...

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M.G. and ME (click below)


I started to run with the motivation of loosing weight. After trashing-out some Kg (around 30) I became motivated for going on with more difficult targets every day until I ran my first Marathon. The sensation after crossing the finish line was one of the best feelings ever, it was kind of promotion for a new life…Since then I have been continuing running, enjoying the fresh air and the asphalt down my feet. 

Two years ago I realised that I had some problems by swallowing and double vision while reading; I started to feel really tired at evenings and because of that I increased the sleeping time without any control(sometimes until 12 hours per day). Despite all of these I continued going out for jogging, without skipping races; I tried to put some order on my sleep: 8 hrs/day. Early at the morning, when I was feeling fresh I was going out... I was very happy because it really worked out. I continued at this “pace” for a while…But, putting all the symptoms together, I was pretty sure that there was something wrong, that there was something more beyond weakness and tiredness. I asked some colleagues at my work and they strongly suggested me to spend sometime in the hospital for a full check-up. 3 weeks of studies and beds but also of pushing through. As I mentioned before, I did not stop. I was going out early at the morning for a run and coming back before the doctor visit, I was also escaping from nurses (Kids do not follow my advice!), I was running up and down stairs, in short: trying to keep on track because I did not wanted to stop moving myself. So far It was the only way to relieve the stress from the idea that a bad diagnostic would show up soon. And finally the nightmare came true…I was diagnosed with MG.

Immediately after the diagnostic I started with medicament which makes the running a bit more difficult and painful compared to before. The last September I ran a marathon which was the first one with the disease, I haven’t faced “the wall” but the pain on the legs was intense and different from other events, even though, with that, I pushed up to the finish line.

 

By now I am trying to maintain a regular physical fitness regime either when my MG is stable or even when is not. This involves running (of course!), cycling, weightlifting.

 

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