Hector Romo-Parra

Hector is running MGA over 2014

Fundraising for Myaware - Fighting Myasthenia Together
€607
raised of €1,000 target
Donations cannot currently be made to this page
Münster Marathon, 8 September 2013
Myaware - Fighting Myasthenia Together

Verified by JustGiving

RCN 1046443 (England & Wales) and SC044744 (Scotland)
We increase public and medical awareness to support people with myasthenia

Story

“Move yourself for the one that can not move”

This year I will be participating in different events to raise funds for MGA, from 5k running, going through triathlon, marathons and maybe (maybe!) a 6 hours ultra. Do you want to know more about my story? just continue reading...

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M.G. and ME (click below)


I started to run with the motivation of loosing weight. After trashing-out some Kg (around 30) I became motivated for going on with more difficult targets every day until I ran my first Marathon. The sensation after crossing the finish line was one of the best feelings ever, it was kind of promotion for a new life…Since then I have been continuing running, enjoying the fresh air and the asphalt down my feet. 

Two years ago I realised that I had some problems by swallowing and double vision while reading; I started to feel really tired at evenings and because of that I increased the sleeping time without any control(sometimes until 12 hours per day). Despite all of these I continued going out for jogging, without skipping races; I tried to put some order on my sleep: 8 hrs/day. Early at the morning, when I was feeling fresh I was going out... I was very happy because it really worked out. I continued at this “pace” for a while…But, putting all the symptoms together, I was pretty sure that there was something wrong, that there was something more beyond weakness and tiredness. I asked some colleagues at my work and they strongly suggested me to spend sometime in the hospital for a full check-up. 3 weeks of studies and beds but also of pushing through. As I mentioned before, I did not stop. I was going out early at the morning for a run and coming back before the doctor visit, I was also escaping from nurses (Kids do not follow my advice!), I was running up and down stairs, in short: trying to keep on track because I did not wanted to stop moving myself. So far It was the only way to relieve the stress from the idea that a bad diagnostic would show up soon. And finally the nightmare came true…I was diagnosed with MG.

Immediately after the diagnostic I started with medicament which makes the running a bit more difficult and painful compared to before. The last September I ran a marathon which was the first one with the disease, I haven’t faced “the wall” but the pain on the legs was intense and different from other events, even though, with that, I pushed up to the finish line.

 

By now I am trying to maintain a regular physical fitness regime either when my MG is stable or even when is not. This involves running (of course!), cycling, weightlifting.

 

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About the charity

Myaware - Fighting Myasthenia Together

Verified by JustGiving

RCN 1046443 (England & Wales) and SC044744 (Scotland)
We support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and support staff. Our aim is to make life easier for people with myasthenia and their families by providing information, advice and support.

Donation summary

Total raised
€606.52
Online donations
€606.52
Offline donations
€0.00

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