Gemma's page

Gemma Hall is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
£345
raised of £750 target
Donations cannot currently be made to this page

Virgin London Marathon 2012 · 22 April 2012 ·

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of rare conditions.

Story

Hello, guess what it is only 6 months till its that time when grab my running shoes and head to London for the marathon. I will be running for the MPS society (http://www.mpssociety.co.uk/) they are a fantastic charity that help many families and children effected by genetic disorders, including my nephew Izzy and his family. They also fund research research into genetic disorders.

Izzy suffers from Hunters Disease (http://mpssociety.co.uk/index.php?page=hunter-disease). Izzy has had a bad year, with his back and infections, but even through this nhe is still the happy loving self. I love my nephew so, so much and proud of the progress he has been making recently, this is due to an enzyme treatment that he is receiving. This treatment has been proven to be very slowing the effects of Hunters down, this treatment has been made possible by charities such as The MPS........

......please help me, help them.

 

Thanks  

Gemgems xxx

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About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total
£344.16
+ £80.79 Gift Aid
Online
£344.16
Offline
£0.00

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