Story
I am fundraising for Rett Syndrome Research Trust UK.
My 3 year old daughter, Ciara, suffers from Rett Syndrome which is a debilitating disorder that strikes previously healthy little girls just after they have learned to walk and say a few words. Ciara cannot sit unaided, cannot talk and cannot feed herself or purposefully use her hands and cannot communicate her thoughts and feelings.
Rett Syndrome is now regarded within both the medical and scientific community as having the potential to become the first fully reversible neurological condition. However much needed funds are required to make this happen. Hence this cycle challenge!
Without support from people like yourselves Ciara’s life, along with other girls who have Rett Syndrome is very bleak.
Thanks for taking the time to visit my JustGiving page.