Our gorgeous little one year old Freddie died suddenly and unexpectedly on the 10th April in London. He was the happiest and most smiley of little boys; always cuddly, wriggly and very hungry. His mummy Amber, I (Steve) his daddy and all his family loved him deeply and we are all heartbroken to lose him. Our lives will never be the same.

During his short life, he spent more time in hospitals and Doctor's surgeries than anyone of any age should, but he was always happy, resilient and made friends wherever he went. He started suffering prolonged seizures when he was six months old and endured them up until the week before he died - being hospitalised on each occasion. He was diagnosed with epilepsy when he was 8 months old but despite this his death was completely unexpected and as yet (May 2017) the cause still unknown. We may know in time or we may not.

We want to do something meaningful to remember Freddie by and that’s why we are asking our families and friends to make donations in his name. We have chosen to support a number of charities that are important to our family. Charities that either directly supported Freddie and us whilst he was alive, that have helped Amber and I since his death or that continue to do important work helping people with conditions like Freddie's epilepsy and researching sudden and unexpected deaths (and their links to epilepsy).

In the time since Freddie died we have been supported by the wonderful Lullaby Trust Bereavement helpline, with both practical advice and with emotional support that has been much appreciated. By putting us in touch with other families that have suffered a similar death of a child we have been able to talk to someone that genuinely understands the pain we are going through and all that follows. The Lullaby Trust continues to fund research into SIDS (Sudden Infant Death Syndrome) and SUDC (Sudden and Unexpected Death in Childhood) and given Freddie’s sudden death feels particularly important to us.