Liz, Lesley and Vicky's friends' daughter Georgie was diagnosed with L-CMD in November 2014.  L-CMD is a very rare form of congenital muscular dystrophy caused by a mutation in the lamin A/C gene which leads to progressive muscle weakness of the skeletal, respiratory and heart muscles.  L-CMD is so rare that there is little knowledge about the disease progression and there are only a handful of children in the UK that have the condition.  By participating in this event I hope to raise funds to support the research and development into this, as yet, incurable condition.  

Total Warrior is a physically challenging and demanding event but Liz, Lesley, Hazel, Vicky, Emma, Emer and Morven are excited about the challenge!