Story
My Brother and Sister were born with a rare genetic disease called ataxia telangiectasia, The disease entails that when you are born you are mobile like any normal child and you slowly physically deteriorate and usually end up wheelchair bound by the age of 10, along with slurred speech and difficulty with head control as the disease progresses, The Disease Also makes children more likely to develop certain lymphoma's and cancers. with a 20% penetrence in people with A-T. Life Expectancy in people with A-T is about 25 years old.
In August 2010 my 12 year old brother was diagnosed with a very aggressive non-hodgkins lymphoma, He fought with every part of him, defying the odds and the doctors many times, but on the 21st of december 2010 he lost his battle with his A-T and his Cancer.
In The Spirit of my brother I aim to do the great london run in July and the Dublin Marathon in october. A cure for this disease must be found, I dont want anyone else to go through what my brother had to.
I appreciate any support and donations and i thank you all in advance.