Story
In April 2014 I will be running the coast to coast and cycling back again in memory of one amazing little girl .
I am raising money in the memory of
Sadie Rose Clifford who sadly passed
away on the 25th June 2012. All money
raised will help other children in the
same situation. Please read below the
battle that Sadie Rose endured during
her short little life...
On 8th August 2009 Sadie Rose was born,
weighing a very healthy 8lbs 6oz.
But in October 2010 aged just 14 months old Sadie Rose was diagnosed with a childhood Cancer called Neuroblastoma.
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Sad survived front line treatment here in the UK, which has included an initial 70 days of Chemotherapy in November 2010, major surgery in February 2011 to remove her tumour which was located above her left kidney and wrapped around the main artery in the body, her Aorta. This was a life threatening operation but she came out fighting and was home after just over a week in hospital. Sadie recovered amazingly well.
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Sadie
then had
an intensive course
of High Dose Chemotherapy to prepare her body for her
Stem Cell Transplant.
Sadie had her own Stem
Cells given back.
Unfortunately as a side
effect from her High Dose Chemotherapy she
developed a very
serious and potentially
life threatening
disease of her Liver,
called Veno
Occlusive Disease
(V.O.D). This caused
her tummy to swell
and she gained over
2kg in just a few
days, this was due
to fluid being
retained. The disease
took over Sadie's body entirely and she
ended up on Oxygen
24hrs a day. The
Intensive Care Team
came to see Sadie
and had told her family
that they would
expect to see her
in ICU by the
weekend.
Our consultant
had prepared her family
for the worst.
This was the
hardest part of their journey so far.
However Sadie
pulled through
and was discharged
from Leeds General Infirmary after 8
weeks.
In March 2011 |
Sadie had 3 weeks of radiotherapy in June.
This seemed to go very well, so much so
she didn't want to leave!!! However in July,
Sadie started Immunotherapy which didn't
go according to plan......and after just
2 weeks Sadie suffered a seizure and after
an emergency CT Scan the specialist
Neurosurgeons discovered a tumour
on the right side of her tiny brain.
The next day a 4 hour operation to
remove the tumour was carried
out, and sent to the lab for tests.
Which showed that the tumour
was in fact Cancerous. The
Neuroblastoma had
grown......yet again!!
Since July Sadie endured yet more
gruelling Chemotherapy and
after an MRI scan at the end of
the 6 week course of treatment
to destroy any microscopic cells.
Results showed the tumour had
in fact grown again.
In November Sadie Rose started
radiotherapy. The last stage in the
treatment plan is a course of 8H9 Thearpy.
In January Sadie Rose and her parents,
Katie and Darren, went to America to
start specialised treatment in America.
The treatment was quoted at £500,000.
Katie and Darren, and their community
aimed to raise as much as possible to
cover the costs. However, on the 18th
January the family's life was once again
turned upside down when new scans
showed that Sadie Rose had relapsed
again with tumours in her liver and chest.
Sadie Rose was treated for this relapse
in New York as a matter of urgency and
received chemotherapy to try and arrest
the desease. The family then came back
to the UK where Sadie Rose continued
to have treatment in the hope that she
would be able to join a new trial for
relapsed neuroblastoma. However, on
the 15th June 2012, following further
checks, Katie and Darren received the
absolutely devastating news that
Sadie Rose could no longer be helped.
Katie and Darren took Sadie Rose home
to enjoy the remaining time they had
together.
Then on 25th June 2012 Sadie Rose sadly passed away.
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