Story
Around 40 of us are riding from Chamonix to Venice to raise money and awareness for Kennedy's Disease.
http://kennedysdiseaseuk.com are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers.
The aim of the ride is to help raise awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.
The trip itself is entirely self-funded (hotels, food support team etc) so all proceeds go straight to the charity. It will be an enormous challenge over the 8 days, covering more than 1000kms over the Alps with well over 20,000 metres of climbing.
The 'highlights' are:
- 8 days
- 1024 kms
- 22 major climbs
- 19285 metres of ascent, just on those main climbs
- biggest climb is 24.8 kms at a 7.5% average
- 2 days over 170 kms
Frank who is a friend of a number of us and suffers from Kennedy's was hoping to complete the climbs with us on an electric assisted bike. Sadly his health has deteriorated and this is now not going to be possible.
Kennedy's Disease UK (KD-UK) is the only UK based charity raising funds to help raise awareness of this awful disease, which affects a very good friend of the riders. We want to help make sure that this rare, often misdiagnosed disease is recognised as well as making people aware of the effect it has on sufferers, their families and their friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them find a cure.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.