Thanks for taking the time to visit my JustGiving page.  I am currently raising awareness for Georgies Genes.  Georgie is my 3 year old niece who was diagnosed in 2014 with a very rare form of Muscular Dystrophy  (pictured with me on a family holiday in Lanzarote).

Currently there is no cure of the type of Muscular Dystrophy Georgie has (L-CMD).  It is so rare that there is little knowledge about the disease progression and there are only a handful of children in the UK that have the condition. Currently Georgie walks unaided for short distances but is
unable to climb stairs or get herself from sitting on the floor to standing.
She has regular cardiac and respiratory checks and thankfully, for now, her heart and breathing muscles remain healthy.

With Muscular Dystrophy UK's help, the funds Georgie's Genes raises will be targeted specifically at research and development into L-CMD.  I’d be grateful for any donations to help us find a treatment, if not a cure, for Georgie and all the other children around the world who have received this rare diagnosis.   

On 26 June, I along with Georgie's Dad and close family friends will be taking part in the seven hills of Edinburgh challenge, running around 14 miles in length and with 2200 feet of ascent/descent. The route includes Arthurs Seat, Corstorphine Hill, Craiglockhart Hill, Braid Hill, The Castle Esplanade, Blackford Hill and Calton Hill.

We are doing this with the united aim of raising awareness of this charity which is so important to us and close to our hearts.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.