Alan Mowforth

Fundraising for research in to MECP2 Duplication Syndrome

Fundraising for Reverse Rett
£600
raised of £600 target
Donations cannot currently be made to this page
Event: Asda Foundation Sheffield Half Marathon 2019, on 14 April 2019
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

It was one of the happiest days of their lives when little Alfie arrived in late August 2018. Unfortunately though, it hasn't been plain sailing since for our friends Katie and Oly Freeman. They soon encountered difficulties and Alfie was diagnosed with a very rare genetic disorder called MECP2 Duplication Syndrome. Following extensive reading and research they decided to put a lot of time and energy in to raising funds for Reverse Rett. This is a research charity supporting families affected by this rare condition throughout Europe with the ultimate goal of finding a cure which they've discovered isn't necessarily that far away. Please read more on Katie and Oly's justgiving page https://www.justgiving.com/fundraising/alfies-dream

The funds raised will go a long way to helping the charity achieve their goal of finding a cure through genetic manipulation. 

Thank for you taking the time to read this! 

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£600.00
+ £137.50 Gift Aid
Online donations
£600.00
Offline donations
£0.00

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