Story
On April 8th 2018 I will be running the Paris Marathon to raise funds as part of Team David for The SMA Trust.
David is 7 years old and lives with Spinal Muscular Atrophy (SMA). David is a smart, funny and kind little boy who touches the hearts of everyone he meets. He is also my daughter Lily’s best friend! David is incredibly brave and despite the challenges he faces he always has a positive outlook.
Team David was set up by David’s parents after he was diagnosed with SMA and they (along with their many supporters) have been working hard to raise money for The SMA Trust.
ALL funds raised will go directly to The SMA Trust as costs (race entry, travel, accommodation etc) have been entirely self funded.
SMA is a devastating, genetic disease. It is a leading genetic killer of infants and toddlers, with 50% of the most severely diagnosed cases resulting in death by the age of two. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function. However, their minds are unaffected - resulting in bright, intelligent children with varying degrees of physical impairment.
The SMA Trust is the only UK Charity that is solely dedicated to funding medical research into SMA. Funding of further research will encourage advances in the discovery of drugs to stop or slow the progression of the disease, with the ultimate goal being a cure. The SMA Trust is dedicated to finding that cure.
To find out more please visit - http://www.smatrust.org/ and follow Team David on Twitter @ TeamDavid_SMA
Thanks so much for taking the time to visit my JustGiving page : )
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.